With the red blood cells so low because of the ribavirin, I am not able to do anything. Trying to get a hold of the doctor to see if there is anything I can do to fix that. Finally got a hold of the kidney doctor. She put me on megace. Its side effect is to make you hungry. I am very hungry for protein. I even wake up at 2am in the morning starving for protein. My numbers from the red blood cells aren’t getting any better, but at least with this need and want for protein they seem to balance each other out a little bit. I eat a lot. I go the bathroom a lot. I am still real tired but at least I can get some things done. Talk to you next week.
I made it to my primary care physician’s appointment. They rolled me in a wheelchair and she sent me directly over to the emergency room. Once there, they tried starting an IV from my left hand, they tried drawing blood from my left elbow and they finally got blood from my left wrist. My red blood factor had dropped to 7.5 and they think it might be from the Ribavirin I am taking so they placed it on HOLD. Come Friday it dropped to 7 but steadied. They seem to think that the best course of action is to hold me until Saturday and while giving my dialysis to transfuse me with 2 units of blood. Talk to you next week.
Week Seven I have had some difficulties. I went to the nurse practitioner and they gave me some type of breathing treatment. As soon as they were done giving me the breathing treatment, I couldn't do much of anything. My legs were hopping around … [Continue reading]
Still fighting this cold. It is making it very hard for me to eat. I eat a little less for breakfast. Half of what I eat for Lunch and a third of what I normally eat for dinner. Most of the things I was suppose to get done this week did not get … [Continue reading]
This week we found out that the viral load went from 8.8 million to undectible. But it seems when we found out, I caught a cold. So I am feeling weak and it is hard to eat. Hopefully this cold won't last long. I have lots of things to do this … [Continue reading]
This is going to be the week all the big blood tests are going to be due. We will find out about the change in the viral load and all the other numbers. So far the numbers have been looking good that we can tell. The doctor has started reducing my … [Continue reading]
Week Three is going pretty well. The worst thing about it is I still have diarrhea in the morning which started in week two. We were able to cut the Medrol in half from 8 mg to 4 mg and my joints are still doing great. We even took our furniture … [Continue reading]
We finally got the medicine. We are now heading up to the hospital to see how to use it. Remember this is a three hour and a half trip one way. It comes in a box that holds 7 daily boxes. In each of the daily boxes is 3 pills marked am (we were … [Continue reading]
Week two has not gone as well as week one. Luckily my joints still feel pretty good. My arm strength has seemed to stayed. My legs seem to get weak when I stand on them for any length of time. They feel like I am walking in mud and they don't … [Continue reading]
The doctors have told us that they are willing to give me a treatment for the Hep C. This new treatment is called Viekira Pak by Abbvie. They brought me in and gave me the prescription for it and tell me that as soon as I receive the medicine I … [Continue reading]