Now a kidney

Well the liver is doing good. So we can start working towards a new kidney. If I get a new kidney they will just add it to the ones I have already making a the third. There is no subtraction unless one of the kidneys I have has something seriously  wrong with it. My wife is trying to donate.

The Hep C treatment has seemed to work and they have declared me cured.  After all the stays in the hospital and a couple of blood transfusions I am “cured”.  Hopefully the blood transfusion don’t slow down the process of getting a new kidney.  Each blood transfusions causes your body to build up antibodies which makes it harder to match you to another.

Week ten

Still having to eat a lot of protein to keep up.  Which means that I have to go the bathroom a lot too.  My legs are still real painful.  It is kinda of weird but they hurt when you touch them and they hurt when you try to walk on them.  Nothing new this week.  Everything seems to be hanging in there.  Hep C is still showing as undetectable.   The doctor moved the appointment to the 20th and we seem to be moving forward.  Talk to you next week.

Week Nine

With the red blood cells so low because of the ribavirin, I am not able to do anything.  Trying to get a hold of the doctor to see if there is anything I can do to fix that.  Finally got a hold of the kidney doctor.  She put me on megace.  Its side effect is to make you hungry.  I am very hungry for protein.  I even wake up at 2am in the morning starving for protein.  My numbers from the red blood cells aren’t getting any better, but at least with this need and want for protein they seem to balance each other out a little bit.  I eat a lot.  I go the bathroom a lot.  I am still real tired but at least I can get some things done.  Talk to you next week.

Week eight

I made it to my primary care physician’s appointment.  They rolled me in a wheelchair and she sent me directly over to the emergency room.   Once there, they tried starting an IV from my left hand, they tried drawing blood from my left elbow and they finally got blood from my left wrist.  My red blood factor had dropped to 7.5 and they think it might be from the Ribavirin I am taking so they placed it on HOLD.   Come Friday it dropped to 7 but steadied.   They seem to think that the best course of action is to hold me until Saturday and while giving my dialysis to transfuse me with 2 units of blood.  Talk to you next week.

Week Seven

Week Seven I have had some difficulties.  I went to the nurse practitioner and they gave me some type of breathing treatment.  As soon as they were done giving me the breathing treatment, I couldn’t do much of anything.  My legs  were hopping around uncontrollably and my arms were flailing around.   My mother-in-law brought me home and I went to bed for three hours.  I am not feeling much better but I have an appointment with my primary doctor next week.  Talk to you later.

Week Six

Still fighting this cold.  It is making it very hard for me to eat.  I eat a little less for breakfast.  Half of what I eat for Lunch and a third of what I normally eat for dinner.  Most of the things I was suppose to get done this week did not get done.  The doctors gave me a chest xray and said it is not pneumonia.  So at this time I don’t know if the fatigue is brought on by the cold or the medicine.  Hopefully we will get through this pretty quick and we can get on to what is next.  Talk to you next week.

Week Five

This week we found out that the viral load went from 8.8 million to undectible.  But it seems when we found out, I caught a cold.  So I am feeling weak and it is hard to eat.  Hopefully this cold won’t last long.  I have lots of things to do this week.  Hopefully everything gets better.  Talk to you next week.

Week Four

This is going to be the week all the big blood tests are going to be due.  We will find out about the change in the viral load and all the other numbers.  So far the numbers have been looking good that we can tell.  The doctor has started reducing my Medrol.  If everything goes right, I will be off it in about a month.  I am still having problems with bruising.  I am also having problems with the sun.  I have gone to wearing a hat and sunglasses during the day.  As far as the itching skin, we are trying something new.  I am using Aloe aftercare.  That is the stuff that you put on after you get a sunburn.  It is helping much more than using moisturizing lotions.

I am having some problems with my leg muscles.  They seem to be cramping and always seem to be tight.  Eating is still going okay.

Our second month’s supply of pills came this week.  That will do it.  Talk to you next week.


Week Three

Week Three is going pretty well.  The worst thing about it is I still have diarrhea in the morning which started in week two.  We were able to cut the Medrol in half from 8 mg to 4 mg and my joints are still doing great.   We even took our furniture off their risers.  It does seem though that my eyes are getting a little more sensitive to the sun.  So we bought a hat and sunglasses .  Besides that everything seems to be going good.  Talk to you in week four.

Week One

We finally got the medicine.  We are now heading up to the hospital to see how to use it.  Remember this is a three hour and a half trip one way.  It comes in a box that holds 7 daily boxes.  In each of the daily boxes is 3 pills marked am (we were told we take that in the morning) and one pill that is marked pm.  (We were told to take that one ….wait for it….in the evening.)  They also signed us up for three surveys.   Two we will take at different times through treatment with a couple after treatment is finished up to a year later.  The other one keeps a sample of my blood and my reaction to the drugs in a big catalog.

My joints are feeling great.  I feel stronger than I have felt for a long time.  I am getting six to seven hours of sleep a night.  Hopefully everything continues along this way.  Talk to you next week.