What really happened

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On the day I had been scheduled to leave the hospital, they diagnosed me with Cryptococcus meningitis with continuous,non-convulsive seizures. This diagnosis was August 3, 2009. This is a fungus that attacked my brain while my immune system was down.  They did tell my family that they had not seen this infection in 20 years.  They also mentioned that it was a good thing that it had attacked while I was in the hospital and not at home.  My family tells me that they did not find this comforting as I slipped into a coma that I would stay in until around October.  This also started daily lumbar punctures and many, many MRIs and CTs .Now I can only tell you what people have told me that happened during this time.They were able to kill the Cryptococcus by August 17, 2009.  This was done by IV. They gave me a cocktail of 3 different fungus killers plus lots of saline to try to protect my kidneys from the fungicides.This doesn’t work in the long term because now I am on dialysis.

The kidneys and liver are what clean your system of all the things you don’t want to building up.  At this time, my new liver was not functioning at 100% because it was still trying to figure out its new home in my body and my kidneys were doing their best to do everything.I have a strange rash on my legs. It  makes my lower legs have a reddish tint. I was told that I have this because my body was not able to get all the  dyes from the CAT scans and MRIs out of my system.

During this time they fitted me for a halo. I would like to say they’re getting me ready for heaven, but really it’s a medical device they attach to your head to prepare for brain surgery.Now you have to remember that I cannot make any decisions at this time. I am in a coma. This is when my wife and daughter had to make all the decisions for me. All that stupid paperwork we filled out in the beginning came in here to save my life.

Comments

  1. Howdy great blog! Does running a blog such as this take a large amount of work?
    I have virtually no expertise in programming however I had
    been hoping to start my own blog in the near future.

    Anyways, if you have any suggestions or tips for new blog owners please share.

    I understand this is off subject nevertheless I just needed to ask.
    Cheers!

    • This is the first time I tried doing the blog. This was some thing my son in law talked me into. On weeks that I don’t have many medical procedures to do. I have plenty of time.

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