Still going

Now I’m home with my family can take care of me and get my weight back. This last all away until December 26, 2009. At that time I have a seizure of absence . So they rushed me to the hospital where they do a CT scan. After that they up the dosage of both of my seizure medicines to their highest dosage to keep the seizures under control.  I would have visits to the hospital over the next few years as my brain healed and the seizure medicine would be come toxic.  They would slowly wean me from one seizure medication until I am on the small dosage of Keppra that I am currently on.

Finally I can go home and stay for a little while. On February 9 they order a kidney biopsy, my kidneys become more and more of a problem later on. By February 11 it is decided to once again send me to a rehab to teach me the things I need to know.  By this time my family had managed to bring up my weight by about 12 lbs.  (My wife has a great shake recipe that is sure to get weight on you.  If you would like the recipe just leave a message and I will post it.)  Between the time my wife removed me from the first rehab and February 11th, I had had a visiting nurse once a week to my house to check on my condition and weekly visits from the home nurses for occupational therapy, physical therapy and speech therapy.  I hated the speech therapy.  All my muscles had disappeared including the ones in my tongue.  This was causing me immeasurable problems communicating with anyone other than family.  The speech therapist would work on reminding my mind of words I use to know while I would do the dreaded “push on a spoon with my tongue” exercise.  I was so frustrated at this time.  People couldn’t not understand me when I talked; I couldn’t physically do things like stand on my own; and my stupid tongue couldn’t push on that spoon.  Each therapy was greatly needed at this time but they always left me exhausted and cranky.

This is where I have to thank each of the wonderful ladies for putting up with my crankiness at myself; my son for being my therapy buddy; and my father-in-law for making sure I had help to eat the lunch my mother-in-law would make. Finally to the home nurse who told my wife that although when she first brought me home, her nursing team had not believed home had been the correct decision.  The progress I had made while at home and the weight I had put on had proved my wife had made the right decision.  To this day my wife still cries when this time is brought up because this had been the first person outside of family that had told her she had chosen correctly.

This new rehab was much closer to home.  After the last rehab, being able to see me daily was one of the main concerns my family had.  This rehab had to work on my speech and my motor skills. The big thing they had to teach me was how to get out of bed safely and sitting  in my wheelchair. This was kind of neat. They would turn me on the bed and have me put my feet on the ground. Then the nurse would put her knees against mine. This is so my knees would not buckle. On occasion I would miss her knees then she  would have no choice but tackle me back into the bed. On the days that she could get me into the wheelchair we would go to a special room that would have a normal bed and a normal bathroom. This is so when I went home I could get into my bed and get into my shower chair. Let me tell you it is a weird feeling when you get into a shower with the nurse and she has to wash you. I know some people only dream of this but I’m not one of these people. The other thing you have to practice at is getting out of the wheelchair and into a car. For this to happen my wife had to drive up to the rehab center; put me in the car; drive around the circle and get me out of the car. All these things you take for granted because you are used to doing it every day. But when you have to learn how to do it all over again it’s no fun.

The other thing that I had to do at rehab was eat. I was allowed to eat just about anything as long as I eat a lot of it. My father-in-law would come up at lunchtime to make sure I ate a lot of it. My father-in-law was a great guy but he could very determined. He was determined to make me eat. He did everything he could to get me better. When he got sick years later, I felt like that there was very little I could do to help him.