Week eight

I made it to my primary care physician’s appointment.  They rolled me in a wheelchair and she sent me directly over to the emergency room.   Once there, they tried starting an IV from my left hand, they tried drawing blood from my left elbow and they finally got blood from my left wrist.  My red blood factor had dropped to 7.5 and they think it might be from the Ribavirin I am taking so they placed it on HOLD.   Come Friday it dropped to 7 but steadied.   They seem to think that the best course of action is to hold me until Saturday and while giving my dialysis to transfuse me with 2 units of blood.  Talk to you next week.

Week Seven

Week Seven I have had some difficulties.  I went to the nurse practitioner and they gave me some type of breathing treatment.  As soon as they were done giving me the breathing treatment, I couldn’t do much of anything.  My legs  were hopping around uncontrollably and my arms were flailing around.   My mother-in-law brought me home and I went to bed for three hours.  I am not feeling much better but I have an appointment with my primary doctor next week.  Talk to you later.

Week Three

Week Three is going pretty well.  The worst thing about it is I still have diarrhea in the morning which started in week two.  We were able to cut the Medrol in half from 8 mg to 4 mg and my joints are still doing great.   We even took our furniture off their risers.  It does seem though that my eyes are getting a little more sensitive to the sun.  So we bought a hat and sunglasses .  Besides that everything seems to be going good.  Talk to you in week four.

Week two

Week two has not gone as well as week one.  Luckily my joints still feel pretty good.  My arm strength has seemed to stayed.  My legs seem to get weak when I stand on them for any length of time.  They feel like I am walking in mud and they don’t feel as “solid” as they use to.  I don’t know if I am weaker from the medicine or just not use to feeling the joints in my legs working that well.  I am having trouble sleeping at night.  I get up about every night and move to the couch so I can lay in a recliner with a fan on.  I am not tolerating temperatures very well.  I go from cold chills to heat sweats.  The other problem I am having is that my skin is getting really itchy.    I am still glad I am taking the medicine and from what I hear my numbers are getting better.  Talk to you next week.